(Yes I didn't post yesterday. Let's face it, I was sick of making up stuff to entertain everyone :-)
They scheduled KD's lumbar puncture for today instead of yesterday. This is on top of Day One of radiation therapy. So I dropped him off at Shands first thing (I had my own dental relay race to run unfortunately) and he stopped in the clinic for his vitals and labs. Apparently only one person there knew he had to leave right away for his radiology appointment. And this person was not involved with his visit at all. So he had to be pushy about getting things done so he could race down to the shuttle stop for a ride down the street to the Cancer Center for his radiation treatment.
Then he had to hop the shuttle back to the clinic and explain once again why he magically disappeared on them. He had to wait a bit for his lumbar puncture (and Ativan shot). By the time I got there to pick him up, he was sleepy and drugged and giggling. Now he's tired, with a raging headache.
Oh and he's convinced he's turning red. I don't know why. He looks a bit tanner but he's been getting outside more so it's hard to be sure.
Anyhow, this is Day One of this 12 week cycle. Two weeks of daily radiation. Weekly lumbar punctures for five weeks, then switching to weekly pills. And daily chemo pills for 70 days. These people sure know what they're doing. This schedule is incredibly precise. It's been working so far, so we're going along to see what happens.
If you're trying to get him on the phone or online, have a little patience. I suspect he'll spend a lot of the next few weeks sleeping or wishing he was sleeping. In the mean time, good wishes and prayers are always welcome. He's hit a little bit of a low spot by now. His life hasn't been normal since around Thanksgiving because of his illness. He's far enough from 'normal' now that he feels like he may never get back to real life. His health is doing well. It's his spirit that's feeling the pressure of the cancer right now.
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