Wednesday, January 21, 2009

1/21/09

The big news for today is that the test results from the lumbar puncture are in, and he's got beautiful spinal fluid. But we already knew that about him :-)

This means that the cancer cells did not spread from the blood to the spinal fluid, which is a known issue with this type of cancer. This means that extra stretch of chemo is not necessary, which means he's right on schedule.

The other big news is that the nurses finally talked him into buzzing his hair because he was shedding like crazy everywhere. Bzzzt! All gone! He's trilled though. He's been bugging me to do it to him since we checked him in, but I couldn't bring myself to take that final plunge. So yes, he looks like a Hare Krishna now. (I have a similar picture of him at 11-years-old like this but if he found out I posted it, he'd be mad, so I guess I won't.)



Also Kar and Radha stopped in and gave him the card and video from the Friends of KD hockey game they set up in Monday. (You can see the big card taped up behind KD above.) Lots of written and video'ed good wishes from friends and family ... very sweet. I think it's one of those things you rarely get while you're alive. People usually don't usually take the time like that until a funeral, and then it's too late. KD is in the rare position of getting a very pre-houmus eulogy.

Although his numbers and blood counts are all very low, it's all how it's supposed to be. His headaches from the lumbar puncture are still wicked, but getting slightly less so every day. His weight is down enough that the nutritionist is putting him on Ensure to hopefully jump-start him in the right direction. 

Other than that, we're just counting off the last few rounds of chemo and hoping he's ready by his departure date. It'll be here before you know it. Then four to six weeks of out-patient treatment, a few months of watching him bounce back, and they might actually declare him healthy again :-)

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